Yesterday afternoon, we took Elle and Maddie to the zoo. Ironically, we didn't see many animals I guess because they were sleeping, and Maddie was most excited about the squirrel and the crow. Today, Maddie decided to start Fernando's day at 4:30 AM. By 9 AM, Fernando and I were both exhausted but at least both kids were napping. Tomorrow marks Elle's 7 week birthday. She is growing like a weed and starting to grab her toys. She gave us her first social smile at 5 weeks and 1 day. We are still trying to teach Maddie to be gentle with her new little sister. Unfortunately, Maddie does not know her own strength and still tries to swat at Elle and grab her feet. However, Maddie continues to throw tantrums, learn new words and skills everyday, and is too cute!
Elle has her appointment with the Immunology team at Seattle Children's on Tuesday. We will start discussing scheduling her for the qualifying tests to get her into therapy and are hoping to head down to UCLA beginning to middle of October for therapy. The FDA lowered the age limit to 1 month; however, the bone marrow transplant doctors do not want to perform the marrow harvest at this young of an age. They feel that the baby's bones are too immature to get a good harvest, and their recommendation is 6 months to 1 year. However, no one knows if doing the therapy will get better results at 3 months or younger. There is no research that there is or is not any substantial benefit because of the immaturity of the immune system. So, the principal investigator is willing allow Elle to enter the therapy after she reaches 5 kilos (she was at 4.51 at her 5 week appointment). It's a wait and see game.
Yesterday afternoon, we took Elle and Maddie to the zoo. Ironically, we didn't see many animals I guess because they were sleeping, and Maddie was most excited about the squirrel and the crow. Today, Maddie decided to start Fernando's day at 4:30 AM. By 9 AM, Fernando and I were both exhausted but at least both kids were napping. Tomorrow marks Elle's 7 week birthday. She is growing like a weed and starting to grab her toys. She gave us her first social smile at 5 weeks and 1 day. We are still trying to teach Maddie to be gentle with her new little sister. Unfortunately, Maddie does not know her own strength and still tries to swat at Elle and grab her feet. However, Maddie continues to throw tantrums, learn new words and skills everyday, and is too cute!